Kara Vander Veer

August 3rd, 2010
Kara Vander Veer

Kara Vander Veer

Cerebral Palsy

About the Model: I am thirty four years old and I was born with Cerebral Palsy. In my case, CP
effects my speech and mobility. I use a communication device to speak and an
electric wheelchair to get where I need to go. I work as a disability advocate
at an Independent Living Center where I help people get the services they need
to live on their own. In my spare time, I like to go out and dance, travel and
play with my Chihuahua. I don’t let my disability definite who I am. I am just me.

Model: Kara Vander Veer

Charity: Arise

Photographer: Mashu Kobayashi

Patti Junkel

July 21st, 2010
Patti Junkel

Patti Junkel -- Breast Cancer

Breast Cancer

About the Model
Patti is a three year survivor of breast cancer. She is a mother of three and grandmother of two little boys. She manages a local restaurant, has an up beat personality which is evident in her great smile. She loves all things pink and girlie. In her spare time she loves skeet shooting, rock climbing and cardio kick boxing.

Model: Patti Junkel

Charity: Susan G Komen for the Cure

Photographer: Brendan Beavers. Shattered Images Photography

Shana Martin

June 28th, 2010

Shana Martin

Shana Martin -- Huntington's Disease

Huntington’s Disease

About the Model:  Shana is a personal trainer, lumberjack athlete, fitness model, and speaker.  She’s a national and world champion in log rolling and boom-run, teaches young athletes, and has climbed Mount Kilamanjaro.

From Shana’s Website:

I have a 50% chance of also getting Huntington’s Disease. This is a scary thing, but I have known about this for most of my life. There is a test available, but I haven’t had the guts to take it yet. I’m sure I will before I start a family though. I am very open about all of this, so if anybody has any questions about the disease, or the personal factors of it, feel free to contact me. I really do want more people to have knowledge about it, since it is such a rare disease.

Huntington’s Disease (HD) is a devastating, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual’s ability to walk, think, talk and reason. Eventually, the person with HD becomes totally dependent upon others for his or her care. Huntington’s Disease profoundly affects the lives of entire families: emotionally, socially and economically.
Named for Dr. George Huntington, who first described this hereditary disorder in 1872, HD is now recognized as one of the more common genetic disorders. More than a quarter of a million Americans have HD or are “at risk” of inheriting the disease from an affected parent. HD affects as many people as Hemophilia, Cystic Fibrosis or muscular dystrophy

Charity: Huntington Disease Society of America

Photographer: M Blaze Miskulin, Studio 142

It’s About Life

June 28th, 2010

It doesn't always show

Tonight, I was talking with a good friend. In the course of the conversation he sent me a photo of a beautiful young woman he’s known since high school.  She has cystic fibrosis and other condiitons that are likely to develop into lymphoma.  She used to model when she was younger, but life got in the way.  She’s still beautiful.

My father died from cancer.

One the most influential professors I had in college died of cancer.  Another was diagnosed with MS while I was her student.

I have 2 former girlfriends who have MS.

I have 2 close friends with cerebral palsy.

A very good friend of mine has a 50/50 chance of having Huntingtons Disease.

My maternal grandmother had Alzheimers.  It runs in the family.

My paternal grandmother died from diabetes.  It runs in the family.

I’m afraid to count the number of friends suffering from mental illness–eating disorders, depression, and more.

I don’t think there’s a one of us who doesn’t have friends, family, teachers, or respected persons in our lives who are afflicted by a serious or terminal disease.  We aren’t doctors.  We aren’t chemists. We aren’t medical researchers or powerful politicians.  We can’t find the cures and we can’t make the laws that apportion the money to find the cures.

But some of us do have another type of power.  We’re artists.  We can make all of this personal. This is what we do.

It will take me a couple days to get the site fully set up, but I’m asking for contributions right now.  The contributions I’m looking for?  Photos.  Photos of people with chronic, serious, even terminal diseases.  Photos of active, attractive, powerful, every day people suffering from these diseases.  We’re constantly bombarded by images of people in hospitals, on life support, begging for our sympathy.  It can be hard to sympathize with someone who’s hooked up to a dozen life-support systems.  It’s really easy to say “that’s not me”.  And from there, it’s a tiny step to say “that will never be me”.

However… images of attractive people–people we want to be–saying “I’m dying; please help” strikes home.  It gets attention.

TerminalHotness.com will not collect any money.  It will simply point people to recognized charities, research groups, and political lobbyists that seek to cure debilitating and terminal diseases.  Every gallery will have a link to the appropriate charity or charities. Every one of those charities will be listed in the sidebar.

What I’m asking for is simply this:  Photos.  Professional-quality photos of active, attractive people who deal with potentially debilitating or fatal diseases.  We’re not looking for sympathy. We don’t want to be pitied.  We’re strong, attractive, and sexy… we just have some other shit to deal with on the side.  We may need a cane, or a wheel chair, or medicine… we may be dead in 5 years… but we refuse to let that prevent us from being beautiful.

If you’re interested in contributing, please do.